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Megan’s ‘naughty kidney’ inspires the fundraisers

Published date: 10 April 2014 |
Published by: Alex Watt
Read more articles by Alex Watt


 

A LITTLE girl with a rare kidney disorder has inspired a community to raise funds for charity.

Five-year-old Megan Roberts, a student at Twm O'r Nant school in Denbigh, has been treated since birth for a rare kidney disorder called hydronephrosis.
Megan's mother, Carys Jones, of Rhewl, said: “It showed up on my 20-week scan that she had kidney problems. They managed it while I was pregnant and then the treatment has continued since Megan was born.

“When we found out, it was fear really. My little sister had the same thing when she was a baby, although it's not hereditary, and she ended up having to have her kidney removed.”

Hydronephrosis is a swelling of the kidney which prevents urine draining from the kidney into the bladder.

Carys added: “We go for regular scans and meet quite regularly with consultants at Alder Hey and Glan Clwyd.

“On a day-to-day basis it's mainly about watching Megan's diet and making sure she drinks lots of fluids. The school understands completely and manages it really well.”

Megan also has other complications with her kidney, including “duplex kidney”, a problem in which the organ fights against itself, but Carys says Megan takes it all in her stride.

“Because Megan's been dealing with it for so long she sees the trips to the hospital as a bit of an adventure. She calls it her 'naughty kidney'.

“You would never ever know that Megan has kidney problems. A lot of children would have been affected by it but she is amazing. She copes with it so well.”

Carys works closely with Kidney Research Wales and an annual charity football tournament provided the chance to raise some money for the charity.

Megan's father, Kevin Roberts, was part of a team of Rhewl veteran footballers that raised £500.

Rhewl won this year's Northop Hall Charity Veteran's Shield tournament, defeating Northop Hall Nomads in the final.

Kevin Roberts said: “It's a pre-season tournament and we do a charity fundraiser each year. All the money raised goes to a charity close to home.

“It was brilliant and the money means a great deal. It is all for Kidney Research Wales and it will really help.”

The couple hope this will kickstart fundraising efforts and raise more awareness of illnesses like Megan's and the great work of Kidney Research Wales.
Carys said: “This charity football match has been the starting point for me to realise that there isn't enough awareness up here. It's not something which will happen overnight but I'm in close contact with Kidney Research Wales in Cardiff and we know there needs to be more awareness raised in the North of Wales, particularly Glan Clwyd.

“We're looking into doing more fundraising and anything more we possibly can. Kidney Research Wales have a lot of fundraising events, such as sponsored walks, and even if it's just selling raffle tickets I plan to get involved as much as I can.
“It'll be hard work but seeing Megan and everything she's been through; she's my inspiration.”

For more news from across the region visit newsnorthwales.co.uk

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